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11/09/07

TB Vaccine Causing Deaths, HIV Vaccine Not Effective, Caffeine Helps Preemies

Posted by : Julia Fuller in Parenting Children with Special Needs Blog at 08:10 pm , 331 words, 299 views  
Categories: In The News

Reuters reported on Monday that infants who are infected with the AIDS virus are getting sick and some may be dying as a result of being vaccinated against tuberculosis. According to the article, one study found that 75 percent of the children with BCG disease had died and 70 percent of those children were infected with HIV. The BCG or Bacille Calmette-Guerin vaccine appears to be causing serious infections in these children, activated TB can kill quickly.

Read the entire article.

Around 12 percent of American babies are born prematurely, that is before 37 weeks gestation. Researchers are excited to... more


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09/28/07

Exposure to Mercury Causes Tics/Tourettes?

Posted by : Julie in Parenting Children with Special Needs Blog at 09:34 am , 682 words, 638 views  
Categories: In The News

The CDC is at it again, trying to prove that the thimerosal in vaccines does not cause neurological damage. It appears that the harder the try to prove this, the more it looks like mercury is to blame for a whole host of neurological/neuropsychological disorders.

This article, from David Kirby, clearly outlines the questionable parts of a recent CDC report published yesterday in the New England Journal... more

08/21/07

I Take Child Abuse Allegations Very Seriously…But

Posted by : Julie in Parenting Children with Special Needs Blog at 10:12 pm , 417 words, 194 views  
Categories: In The News

Something just doesn’t add up in this report today, coming out of Athens, Georgia, home of the University of Georgia. Seems a university math professor was arrested during an IEP meeting last week for making threats against the school personnel in the meeting. Hmmm…not having a hard time imagining what would push a parent to such an outburst.

Now the paper reports that this professor had previously been investigated for child abuse. Hmmm…again. A quick read of the article works... more

07/16/07

Velo-Cardio-Facial Syndrome VCFS The Second Most Common Genetic Syndrome

Posted by : Julia Fuller in Parenting Children with Special Needs Blog at 06:48 am , 359 words, 148 views  
Categories: In The News

vcfslogoVelo-cardio-facial syndrome, VCFS, also known as Shprintzen syndrome, is the second most common genetic syndrome after Down syndrome. It was discovered by Robert Shprintzen, Ph.D., a professor at SUNY Upstate in 1978. The National Institute of Health estimates that VCFS afflicts 130,000 Americans, approximately one in 1,600 babies are born with VCFS. but most people have never heard of it. VCFS is the result of a random mutation causing a small part of chromosome 22 to be deleted.

VCFS is so difficult to diagnose because of the wide range... more

07/13/07

What if You Watched Your Only Child Grotesquely Metamorphose?

Posted by : Julia Fuller in Parenting Children with Special Needs Blog at 05:40 am , 421 words, 104 views  
Categories: In The News

vietnamassociatedpress2007What if you watched your only child grotesquely transform right before your eyes and you couldn’t stop it from happening? What if your only child was born perfectly normal and then began metamorphosing and you didn’t know what was causing it. What if your only child learned to walk, then one day couldn’t because her body had become so disfigured?

That is exactly what is happening in Danang, Vietnam. A recent scientific study has found high levels of health-threatening contamination from Agent Orange, more than 30 years after... more

07/10/07

Watch Your Special Needs Child’s Computer Usage

Posted by : Julia Fuller in Parenting Children with Special Needs Blog at 05:44 am , 428 words, 79 views  
Categories: In The News

computerflikr2007While all children could benefit from supervised computer usage, it is especially important when you have children with emotional, developmental, and learning disabilities. Julie, my blog-mate, and I have children with poor decision making skills, examples of which, we frequently share with you all.

Just imagine then, what easy prey they could be for a pedophile or other sex offender surfing the internet. It didn’t really hit home for me until today when I read an article in our local hometown... more


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06/28/07

We Never Gave Up

Posted by : Julie in Parenting Children with Special Needs Blog at 03:55 pm , 338 words, 86 views  
Categories: In The News

What an awesome thing for parents to be able to say! (And how difficult it is at times.) Juxtaposed to the Benoit tragedy in today’s Atlanta Journal-Constitution was a heart-warming story about a young man with autism who graduated from our local high school…with a regular education diploma no less.

Not too many lines in and you realize that this child is not only autistic, but he was adopted from El Salvador at age 2. Now the article really has my attention. I quickly... more

Why Did Chris Benoit Kill? Because He was a Special Needs Dad?

Posted by : Julie in Parenting Children with Special Needs Blog at 02:37 pm , 671 words, 688 views  
Categories: In The News

For those of you who haven’t turned on the TV lately, Chris Benoit, an internationally-known WWE wrestler killed his wife, his 7-year-old son and himself over a three-day period last weekend. The news broke on Sunday here in Georgia (the family lived in an affluent area south of Atlanta). But the details are now revealing that the son’s special needs had much to do with this tragedy.

Apparently Benoit’s son Daniel had ... more

06/23/07

A Mom’s Gotta Do What a Mom’s Gotta Do!

Posted by : Julie in Parenting Children with Special Needs Blog at 08:18 pm , 505 words, 92 views  
Categories: Support, In The News, Advocacy

Margaret Mikol is a mom after my own heart. Even though we’ve never met, I feel like I know a great deal about her. Margaret is the mom of a special needs child. In 1978, her daughter, Julia, was born with a severe combined immunodeficiency, a condition that required a completely sterile environment. Like the “boy in the bubble”, Julia lived at the hospital (and so did Margaret) for years. Like the parents of Katie Beckett, the Mikols quickly exceeded their insurance coverage and had to rely on Medicaid to cover the $350,000 annual price tag. Like Katie Beckett,... more

More Broken Systems in Georgia

Posted by : Julie in Parenting Children with Special Needs Blog at 06:42 pm , 493 words, 70 views  
Categories: In The News

No sooner did the decision come down about the state of Georgia awarding its largest settlement ever for a death in one of its mental hospitals, but the reporters for the Atlanta Journal-Constitution are finding even more disgraceful care of Georgia’s mentally ill population. This time it’s in our state’s prison system.

Apparently Georgia’s system is being audited... more

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