Parenting Children with Special Needs Blog
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06/29/08

New Resource - The Edge Foundation: Coaching Students With ADHD

Posted by : Julia Fuller in Parenting Children with Special Needs Blog at 04:00 pm , 347 words, 199 views  
Categories: Advocacy, Interventions - ADHD / ADD

A new resource is available for students who struggle with educational success because of their ADHD. An organization called The Edge Foundation has begun training coaches to help ADHD students succeed in school and college. Coaching seems to be a new trend in the U.S.A to help young people succeed in the world despite their learning challenges. What does an ADHD coach from The Edge Foundation do for students with ADHD? According to their website, once hired, the Edge Foundation coach will contact the student every... more


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02/21/08

Learning to Lobby

Posted by : Julie in Parenting Children with Special Needs Blog at 06:48 am , 740 words, 172 views  
Categories: Advocacy

Yesterday, I got a chance to do some pretty heady stuff! As part of my Partners in Policymaking class we have to do “projects”. My project yesterday was going to the state capitol and working with an intern advocate who lobbies for disabilities issues there. So I got a one-on-one personal lesson about how to talk directly to congressmen during legislative sessions.

He had my morning mapped out for me, and instructed me how to stand in the line of people wishing to pull representatives off the House floor and speak... more

02/04/08

Our Own Little Silos

Posted by : Julie in Parenting Children with Special Needs Blog at 07:13 pm , 524 words, 219 views  
Categories: Advocacy

One thing that became apparent as I listened to our speakers at the Partners in Policymaking class this weekend was how huge the disability community is (over 53 million Americans at last count).

The other thing that became apparent was how splintered this “minority” is as a group. We have hundreds of organizations representing every possible disability we could have. In fact, I got an email today about Non-verbal learning disability (NLD). Lest you think I’m making light of this disability, I know that it’s real and a serious problem for many. But the email... more

12/03/07

Support the IDEA Fairness Restoration Act – Call TODAY!

Posted by : Julie in Parenting Children with Special Needs Blog at 06:16 am , 663 words, 247 views  
Categories: Advocacy

Feeling politically active today? If your child has an IEP, or you know children who do, please consider calling or writing your congressperson today to ask them to support H.R. Bill 4188, the IDEA Fairness Restoration Act, a bipartisan bill sponsored by Representatives Chris Van Hollen and Pete Sessions. This bill would restore the ability for parents who prevail in a due process hearing to recover the cost of their expert witness fees.

In 2006, the Supreme Court took away this right through their decision in Arlington Central School District v. Murphy. Now parents of children... more

10/30/07

Resource Tuesday: Advocate Institute

Posted by : Julie in Parenting Children with Special Needs Blog at 08:45 pm , 341 words, 104 views  
Categories: Advocacy

I received a pass into the recent Advocate Academy’s webinar on Understanding Assessments: Psychological, Processing and Achievement Evaluation Data given by Alan Brue, Ph.D. Although I missed the live airing of the event, I have been catching up on the course work and hope to give you some insights into how to understand the evaluations school psychologists give our children.

Advocate Academy is the education program of the Advocacy Institute,... more

10/26/07

Everyone Has A Story To Tell…

Posted by : Julie in Parenting Children with Special Needs Blog at 11:39 am , 523 words, 134 views  
Categories: Advocacy

These words on a bookmark from EMK Press reminded me of Bruce Anderson at Community Activators and what he taught my Partners in Policymaking class on telling our story. (Side note: Check out the awesome Adoption Parenting: Creating a Toolbox, Building Connections book published by EMK Press.)

I blogged about our weekend with Bruce earlier this month. We learned a great deal about what motivates us to volunteer and give back, and how suffering produces blessings. But... more


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09/14/07

School System Retaliation On the Rise?

Posted by : Julie in Parenting Children with Special Needs Blog at 06:33 am , 710 words, 109 views  
Categories: Advocacy

It’s one of those situations I can’t figure out. Are the school systems in Georgia retaliating against parents more, or are we just learning about it more? Are the systems upping the ante on those parents who advocate for their children receiving special education services OR are those parents becoming more vocal about the wrongs that have always been done to them?

I honestly don’t know. But I have a hard time hearing about it…because it is happening so much and in so many different ways, all over the state. Readers here indicate that it’s happening nationally as well.

Yesterday’s... more

09/10/07

Sticks & Stones May…But Words…

Posted by : Julie in Parenting Children with Special Needs Blog at 11:54 am , 585 words, 187 views  
Categories: Advocacy

Yesterday, our Partners in Policymaking class met Kathie Snow, a “just a mom” convert who is now a nationally known speaker, writer and consultant on disabilities. Her website, Disability is Natural is a cornucopia of common sense information, resources and products on how to treat, communication with and communicate about persons with disabilities.

Kathie is definitely a rebel rouser. She shook up the room full of parents of children with... more

09/08/07

Tenacity & Grace

Posted by : Julie in Parenting Children with Special Needs Blog at 07:22 pm , 458 words, 126 views  
Categories: Advocacy

Today was my first day of Partners in Policymaking. And the first thing I learned...all positive change in the arena of children’s rights has been made by moms. Yep, the main force to be reckoned with is a bunch of organized and angry moms! As one of our speakers put it, the “tenacity and grace” of moms goes much farther than all the knowledge and intellect of experts and politicians. I agree...and I like the image...tenacity and grace.

There are 35 of us in the class from all over Georgia; three self-advocates and the... more

09/07/07

Starting Partners in Policymaking

Posted by : Julie in Parenting Children with Special Needs Blog at 08:12 am , 524 words, 122 views  
Categories: Advocacy

I’ve been accepted into the 2007-2008 class of Partners in Policymaking for my state. This program, now in its 20th year, was created by the Minnesota Council of Developmental Disabilities to teach parents and self-advocates the power of advocacy.

The organization has on-line courses available on their website, but nearly every state in the US, as well as the Netherlands, New Zealand, Ireland, Portugal, Scotland, and the United Kingdom. Over 15,000 people have graduated from their programs.

I applied back in July and was accepted. I was accepted two years... more

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