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03/18/08

It’s Palm Sunday!

Posted by : Julie in Parenting Children with Special Needs Blog at 06:53 am , 566 words, 245 views  
Categories: Daily Blessings

These were LuLu’s first words Sunday morning as she bound out of bed on the long-awaited day. LuLu had set and reached a personal goal: to sing with the children’s choir on Palm Sunday. LuLu, who for years has not participated in children’s choir because the children make “unexpected noise” that overwhelms her senses and her behaviors have always alienated her from interacting with the other children, watched with great envy as the choir sang at Christmas.

“I wish I could do that,” she sighed. I told her I thought she was able, if she wanted. But that she... more


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02/26/08

New-Found Independence…The Down Side

Posted by : Julie in Parenting Children with Special Needs Blog at 06:07 pm , 563 words, 262 views  
Categories: Daily Blessings

I’m tickled at LuLu’s brightening and new-found independence. She’s excited about operating the microwave, learning how to heat water to prepare her lunch and answer the phone. But with each new independent step, I’m reminded that I need to watch her carefully, to make sure she understands exactly what she’s doing. For example: To avoid things like foil in the microwave, or the wrong burner being heated up.

And Marie’s blog about EMDR reminded me of the one incredibly successful... more

02/22/08

LuLu’s “Brightening”

Posted by : Julie in Parenting Children with Special Needs Blog at 07:21 pm , 544 words, 352 views  
Categories: Daily Blessings

There’s been a thread of happiness floating through the air around here. Despite times everyday when LuLu exhibits frustration, there are times when she’s just happier, and “brighter”. Three weeks ago we went back into the hyperbaric oxygen chamber on advice of one of her doctors to see if we could get some relief from the GI distress she has been in.

The folks at the hyperbaric center we use are angels. They were able to work us into the schedule immediately, and in such a way to minimize the number of trips (1-hour, one-way) we had to make by scheduling two... more

01/16/08

Ear Plugs, Pictures and Just Being Together

Posted by : Julie in Parenting Children with Special Needs Blog at 08:34 pm , 600 words, 503 views  
Categories: Daily Blessings

Through our rather challenging week of traveling and funeral with LuLu, we have to say we’re most thankful for ear plugs. Yep…they saved the day on many occasions.

One thing is for sure; we have a family that loves to laugh. And as more of us showed up in Mattoon, Illinois, the laughter reached louder and louder decibels. Super Dad, in an unexpected stroke of genius, remembered he had some ear plugs in his suitcase from his work. LuLu has rejected ear plugs on numerous occasions before; but after her successful trip to Chuck E. Cheese’s , she was willing to... more

12/29/07

Hangin’ with Her Sisters

Posted by : Julie in Parenting Children with Special Needs Blog at 10:58 am , 327 words, 269 views  
Categories: Daily Blessings

Today LuLu is hanging out with her big sisters. I’m not exactly sure how this happened. But it’s a welcomed event. Our eldest invited Kay to breakfast at their favorite bagel shop this morning and LuLu asked if she could tag along. Usually the answer is “no”, but for whatever reason…today it was “yes”. LuLu was so excited that she was up at the crack of dawn getting ready and then being impatient for a couple of hours.

The breakfast was over and the girls back quickly. My heart leapt for a moment, thinking there’d been an “incident” at the restaurant, but they... more

12/25/07

Merry Christmas…And Happy Napping to All

Posted by : Julie in Parenting Children with Special Needs Blog at 07:46 pm , 483 words, 325 views  
Categories: Daily Blessings

Christmas in a blended family (step, bio and adopt) means being flexible, with a capital “F”. Now that my stepchildren are young adults, scheduling the holiday seems even more challenging. This year, for a change, we didn’t complicate things by traveling to or hosting my family from Missouri, but we wanted to have the full Christmas dinner with all the trimmings.

My stepdaughter had obligations at her boyfriend’s house, so after juggling everyone’s schedule we decided that 8:00 am was the best gift opening time for the whole crowd. While at first I was concerned that... more


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12/20/07

Beating the Odds in Foster Care Adoption

Posted by : Julia Fuller in Parenting Children with Special Needs Blog at 06:27 pm , 397 words, 338 views  
Categories: Daily Blessings

Usually I am about four weeks behind in reading the local newspapers so periodically I have marathon reading sessions. These marathon sessions involve skimming the headlines, reading the obituaries, legal publications, and I always glance at the help wanted ads. You never know when a great job might become available in the area, especially for one of my children. I happened to read the Sunday paper just two days late this week and saw a help wanted ad for a job that I thought might interest Shea.

I decided to type up a resume for him just in case he was interested... more

11/30/07

“Doubly Weird” Adoptive/Foster Families

Posted by : Julie in Parenting Children with Special Needs Blog at 07:54 am , 740 words, 197 views  
Categories: Daily Blessings

One of the other intriguing comments on my blog about our children’s privacy was from “Scraps” who said:

When I was growing up we knew of a few foster/adoptive families. They were always "a little weird", and provided much fodder for judgmental conversation. As a child, I was unaware how unkind and ignorant those conversations were. Now I have no doubt that we are the "weird family" who provides plenty of gossip fodder.

Yep…me... more

11/27/07

Removing Temptation

Posted by : Julie in Parenting Children with Special Needs Blog at 07:14 am , 313 words, 163 views  
Categories: Daily Blessings

LuLu is using her extra nanosecond of self-control in the right direction. She has a “thing” about plastic bags, especially trash bags. Her obsession on trash bags is a weird amalgam of trauma memories and sensory stimulation and was part of what got her in trouble with me the other late night.

What I didn’t realize until yesterday was that she’s fascinated, obsessed with…or tempted…by a trash bag in... more

11/19/07

Operation Christmas Child

Posted by : Julie in Parenting Children with Special Needs Blog at 05:49 am , 415 words, 193 views  
Categories: Daily Blessings

It never ceases to amaze me at how LuLu’s heart is in the right place, no matter what her mind and behaviors seem to be doing. Yesterday was our church’s formal collection of Operation Christmas Child boxes. If you’re not familiar with this program, it’s a simple and tangible way that anyone, especially children, can reach out to children around the world and give back some of our blessings. This year, for example, Samaritan’s Purse plans on delivering over 8 million Operation Christmas Child boxes to children in... more

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