Parenting Children with Special Needs Blog

03/07/07

Here is Your Engraved Invitation – Living With FAS

Posted by : Julia Fuller in Parenting Children with Special Needs Blog at 08:07 am , 402 words, 120 views  
Categories: A Day In the Life of FAS / FAE
engraved invitationThe children have been called and supper is on the table. Dad asked if anyone prayed and then there are a couple of volunteers. While sitting around the table some are chatting, someone’s getting ketchup, someone else is getting milk, some just dig right in and start eating. That’s when we notice that there are only eight children at the table, one is missing.

We didn’t give our daughter with FAS her individual, special invitation to join us at dinner which she requires at every meal. Usually I make hints; like potatoes taste a lot better warm than cold. I don’t know why I continue to do that, why can’t I just say, “Honey you need to eat, too?”

My husband likes to berate me for doing that as well, for years he’s been saying, “Just tell her exactly what to do.” You should know by now that hints and innuendos don’t work. Nor is it profitable to ask “why” questions and expect a logical answer or anything other than “I don’t know.” So why do I continue to do it?

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It’s Sunday morning and everyone has eaten breakfast, and dressed up in their Sunday best ready to load up into the van. I make the announcement that it is time to get into the van.

Someone grabs the diaper bag, another grabs the baby and out we go locking the door behind us. After a few minutes all the children are buckled up or strapped into car seats and then I put the van into gear.

That’s when someone notices that she isn’t in the van. We failed to give our daughter with FAS her individual, special invitation to join us in the van which she requires every time we leave the house.

I have considered making a recording of some of the phrases that I say several times a day, and then instead of repeating myself I can just push the button for that phrase.

Just think, then I wouldn’t have to worry about my tone of voice when I say it. It would just always come out in a nice even tone, direct and to the point. No extra baggage attached to the phrase that may cause hurt feelings, won’t help my cause, and definitely will add to the ever present state of confusion.

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Comments, Pingbacks:

Comment from: condo-mom [Member] Email
Julie, don't know if you see these comments 4+ months after your entry -- but this is my life too !! Regularly after I call everyone to the table Joy will say, "Do I come to the table?" Regularly after I've told everyone to go get in the car she will ask, "Do I go get in the car now?" I usually attribute it to NOT LISTENING but you've given me a different thought -- she seems to need to be asked, told or invited Separately and Individually. Even then she will often repeat what I've just said in the form of a question, like there is some bizarre gameshow in progress. But often when she is in a group (my kids, or a co-op class, or Sunday School) she seems unsure if the instructions to the group apply to her. Or rather, she is sure they do NOT and so does not register them at all !!
PermalinkPermalink 07/12/07 @ 11:53
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