Parenting Children with Special Needs Blog

09/21/07

Is It Time to Give Up?

Posted by : Julia Fuller in Parenting Children with Special Needs Blog at 06:13 am , 514 words, 218 views  
Categories: Interventions - FAS / FAE

For about a year now, I have been trying to teach my daughter with Fetal Alcohol Syndrome to keep track of time. Our dreams for her future include her holding a job and living in her own apartment, possibly with us controlling her finances. To make that possible she needs to be able to keep track of time and use some type of planner or calendar.

Her IQ is at the borderline of mentally retarded and low normal, the high 60’s. She will be 14 in a few days and I think it may be time to give up on this dream and seek another. Trying to teach her to keep track of time and her schedule has caused many hurt feeling and arguments.

All of the children are homeschooled so they don’t have rigid schedules most of the time. Their instructions are to get lunch between 11am and 1pm and then do their chores at 1pm. That way if they are in the middle of an assignment or project, they can stop when it is most convenient for them or decide by how hungry they are that day. She also needs to remember that she takes piano lessons on Wednesday afternoons.

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Both Super Dad and I have talked to her about using a planner. We’ve let her make her own, we’ve purchased them at the store, and I’ve made special planners in Microsoft Excel for her. She refuses to look at them because she says they are stupid.

Yesterday, she insisted that she ate lunch and then described the ham sandwich she had made. Two of the younger children and I had sat in the kitchen from 10am until 1:30pm doing school and eating lunch together. She never came into the kitchen; in fact, she never left her computer where she was working on a project.

This is the first time that I know of that she has created such a story. However, she continues to struggle with getting her lunch in the set period. She hears the other children, seven others, talking and getting their lunches, but it just doesn’t register with her. Then she hears them doing their jobs, but that doesn’t register either.

Therefore, I believe it is time for me to go back to telling her what to do all day. How does that prepare her for her future? When she came to live with us, she made such leaps and bounds in her abilities that I guess I thought I could “fix” her. I honestly believed when we adopted her at age six, that she would lead a near normal life someday.

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Comments, Pingbacks:

Comment from: Sunbonnet Sue [Member] Email
Managing a daily schedule is a very important thing. It is not necessarily time to give up. But it might be time to ask for outside assistance. There are some really wonderful resources out there for situations like this. Finding them can be tricky, but well worth the time and energy. Good luck.
PermalinkPermalink 09/21/07 @ 08:33
Comment from: MamaS [Member] Email
Have you tried a "talking clock"? We used one for my mother in the ealy stages of Altzheimers. You program it and it says things like "Eight o'clock. Time to get up" and "Ten o'clock. Take you medicine." Maybe that could help, at least when she is at home?
PermalinkPermalink 09/21/07 @ 09:54
Comment from: lmg1567 [Member] Email
Have you tried setting an alarm on a watch for her? Like, the alarm goes off whenever it's time for her to change activities - or would she just consider that "stupid" too? Just a thought, someone suggested that for my son, who will probably never learn to tell time either (his IQ is overall around 82, but in math skills it's actually 72, so I'm seeing no concept of time/money with him at all and we've been working on it forever). I hope you get some good ideas and can pass them on.
PermalinkPermalink 09/21/07 @ 10:02
Comment from: condo-mom [Member] Email
On the topic of Schedule: for the past 2 weeks my daughter has forgotten about her Ballet class on Fridays. She only has it once a week, all her friends are there, and she loves it -- but can't seem to remember it! It is virtually the only extra-curricular thing she has right now. On the past 2 Fridays we've been ready to get her there, but it didn't happen.

She has a calendar and there's a big one in the kitchen and she can look in mine if we're on the go . . .

Will she remember today? It is 9:04am here and she is not up yet. (I usually get her up, but to be honest, she is such a crab when woken that it's not too motivational.) We'll see . . .
How will this kid every hold a job?
Rachel
PermalinkPermalink 09/21/07 @ 13:11
Comment from: Julia Fuller [Member] Email · http://special-needs.adoptionblogs.com/
MamaS, do you have any idea where to purchase a talking clock? Her birthday is coming up and that might be a nice gift along with her battery operated razor.
PermalinkPermalink 09/22/07 @ 11:52
Comment from: psych114 [Member] Email
Time management is a frontal lobe related issue and a tricky one to "teach". Instead accommodations and compensatory strategies seem to work best. It is best to steer away from directive verbal prompts- they don't help the child become more independent with the new skill. Consider strategies like visual cue cards, alarms, visual "time timers", recording devices, palm pilots, and other electronic gadgets (tip: search for gadgets geared for those with memory loss). Regular use of such strategies along with regular schedules and predictable routines can eventually lead to more automatic responses. Eventually she can get supports on the job or in an apartment if she needs them. Good luck!
PermalinkPermalink 09/22/07 @ 12:00
Comment from: Julia Fuller [Member] Email · http://special-needs.adoptionblogs.com/
Thank you psych114. I may create some cue cards in publisher and put them in strategic locations. I'm definitely going to seek out some type of electronic gadget for her birthday that will help her.
PermalinkPermalink 09/22/07 @ 16:52
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