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Parenting Children with Special Needs Blog

05/04/06

LuLu Says...New Category

Posted by : Julie in Parenting Children with Special Needs Blog at 06:23 pm , 447 words, 140 views  
Categories: A Day In the Life..., LuLu Says
Several of my friends (and even acquaintances) are always commenting on how "funny" LuLu is. Whether intentional or not (I think it is NOT intentional), she does have an interesting perspective on life. As I've started to unravel who she is, I'm coming to understand this perspective is probably greatly shaped by the fact that she has very, VERY poor processing skills (visual and auditory) and likely a VERY high IQ (it's high now, but if the deficits weren't so severe, I've been told it would be much higher.)

Couple those issues with some of her unique obsessions, trauma reactions and tics and PDD behaviors, and she is very INTERESTING to talk to.

So, at the request of some of my readers (i.e. friends) I will blog from time to time about some of the things LuLu says.

Here's the latest:

Background: I have a cyst on my right leg. Have had it since I was 5. It is changing and causing me some discomfort, so she and I headed to the surgeon today for a pre-op appointment. Here's the conversation:

LuLu: Are you going to get the cyst taken off in May.

Me: Yes, I am.

LuLu: GOOD! Can I have it?

Me: Can you have what?

LuLu: The cyst, I can keep it in my room.

Me: No, I don't think that would work. They have to send it off...

LuLu: (interrupting) I mean when it comes back from the lab and it's not cancer, can I have it?
(At this point you are probably a bit impressed that she would know why they would have to send a cyst off to the lab, even though we've never discussed it...but those of us who know her know that she knows EVERYTHING medical. It is -- along with bugs -- her obsession.)

Me: What are you going to DO with the cyst?
LuLu: Show it to my class.

Me: You don't have a class. You're staying home with me for school, remember?

LuLu: I mean when I GET a class.

Me: That probably won't be for a long time.

LuLu: Well, then...I'll show it to my new teacher.

Me: I will probably be your teacher for a while, LuLu.

LuLu: Oh, so we'll keep faking school then, huh?

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I had run out of comebacks at that point. Truth is we have been faking school a bit -- me not pushing her for much academically, but focusing on therapies, typing skills and reading with her instead of putting the reading burden on her. We've been studying bugs, writing/illustrating a story on our spring trip -- and none of that feels like school to her.

Comments, Pingbacks:

Comment from: AdelaideDupont [Member] Email
Lulu is so funny!

She reminds me of Little Lulu in the cartoon.

Her comments about school are so funny!

And imagine you've had that thing since birth so it isn't news to you!
PermalinkPermalink 05/04/06 @ 20:40
Comment from: Julie [Member] Email · http://special-needs.adoptionblogs.com/
I think this category of blogs will help me, actually. LuLu does say humorous things daily. I just get so caught up in her challenges and the related stresses that I fail to see her unique insights.

Now I'll be watching more closely!
PermalinkPermalink 05/05/06 @ 06:29
Comment from: klkillian [Member] Email
She IS a funny child, with a tender, tender heart. There is so much good in her, which I KNOW is difficult to comprehend and see with everything else going on. I don't envy your daily struggles, but I do envy the remorse she shows.

You have done a great job with her.
PermalinkPermalink 05/05/06 @ 09:14
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