Parenting Children with Special Needs Blog

08/01/07

Non-cooperation or Confusion - Living with FAS – Fetal Alcohol Syndrome

Posted by : Julia Fuller in Parenting Children with Special Needs Blog at 12:20 pm , 552 words, 119 views  
Categories: A Day In the Life of FAS / FAE
spider webA reader recently shared her frustration with me about the 24/7 of living with a daughter with fetal alcohol syndrome. A question that plagues many of us parenting children with fetal alcohol syndrome or other learning disabilities is “Are they really confused or choosing to not cooperate?”

My husband and I have had this discussion many times during our 14 years of foster parenting. He has maintained during the entire time that the problem is confusion. He patiently redirects and gives simple directions one at a time so task can be accomplished in baby steps. Of course, he leaves for nine hours everyday to go to work, which means he isn’t bombarded with the confusion all day long.

This morning, I went to work for three hours. Some of the children were even still in bed when I left, so there really shouldn’t have been any problems, right. Wrong.

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We have a few rules, which are known by all and have been strictly enforced during our 14 years of foster parenting. One being, children don’t discipline other children. You need to take the problem to the person in charge and let that person handle it.

Well apparently, the four-year-old swore at Lyn, our teenage daughter with FAS. If you have ever been around young foster children, you might be aware that some of them have extensive vocabularies. Instead of taking the issue to the person in charge, who would have issued a four-minute time out, Lyn decided to smack her.

The four-year-old also happens to be an accomplished tattletale. Whenever I return home she fills me in on what each person did that she thought was naughty. Then she tells me how she thinks I should discipline each person, with a smile on her face.

When I asked Lyn about the incident, she readily admitted to, what she calls, a slight tap. Then, she proceeds to explain to me, in a rather haughty tone, why she was justified in her actions. I then asked her what our rule is about children disciplining other children, and reminded her that she is about to turn 14 and “A” just turned four-years-old. She recited the rule perfectly; after all, she has been part of our family for 10 years.

I’ve shared with you before that one of my personal favorite forms of discipline is assigning extra jobs. Therefore, I asked Lyn to pick up all the little pieces of trash around the sidewalk, around the garbage can, and under the trampoline.

When I looked outside to see how she was progressing, I saw her putting away the slip-n-slide that was set up for water-play in the side yard. As I continued to watch out the window, she put the bicycles away. Shortly thereafter, she came inside and reported that she was finished with her extra job.

I dutifully went outside to check and of course, the little pieces of trash were still around the sidewalk and under the trampoline. Super Dad would be proud, because I explained again, what she was supposed to do, and then sent her back outside without ever raising my voice.

Related Blogs
Left Behind – Living with FAS – Fetal Alcohol SyndromeWhat is FAS or FAE
Gullible’s Travel’s – Living with FAS
Here is Your Engraved Invitation – Living With FAS
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Comments, Pingbacks:

Comment from: condo-mom [Member] Email
My daughter has a similar amazing ability to recite "the rule" while explaining in a haughty tone why it does not apply in THIS case. I'm seeing a very consistent inability to generalize a rule, even after she has been with us for 8 years and has seen us apply the rule in many, many different situations. Maybe she does not recognize it as The Same Rule because its application can look very different? New Thought for me: perhaps I should be looking for the Consistency in her behaviors and choices (in this case, her continued confusion or missaplication of a Rule) rather than the Inconsistency ("Why does she persist in ignoring the family rule?") After all, she is pretty darn consistent in other areas of behavior!!

I'm re-reading Oliver Sack's "The Man who Mistook His Wife for a Hat" which is fascinating. If the human brain can do some of the things he describes, what is happening in my daughter's case which makes her choices perfectly logical and clear -- to herself?
PermalinkPermalink 08/01/07 @ 13:16
Comment from: Cindy Bodie [Member] Email · http://older-child.adoptionblogs.com
Great post, it so describes what I often experience here.
PermalinkPermalink 08/01/07 @ 13:24
Comment from: lmg1567 [Member] Email
I liked your post. I have 13 and 14 year olds with more severe FASD than their younger sibling who is 12 and it shows in so many ways. I'll ask the older ones what their punishment should be for some misbehavior and they'll reply with, "do extra chores for you". I'll ask, "Have you done your chores for today yet?" which is always met with the most confused looks you can imagine! The 13 yo usually replies with, "I'll go check" as if he can't remember if he's done his chores YET. This pretty much happens on a daily basis. They don't do anything unless they know you're going to check so that makes me think it's deliberate, but then we'll have the same exact thing happen where I'll tell them to do something very specific and I'll proceed to watch them do 3-4 other things and claim the job is done, and they haven't done the actual thing I've asked!! I always feel like it's easier to just do it myself. I can't do that though because I'm seeing just how much repetition these kids need to "get it" and we sure aren't there yet:)

PermalinkPermalink 08/01/07 @ 17:37
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