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Parenting Children with Special Needs Blog

05/11/06

PANDAS - and I don't mean the cute cuddly kind!

Posted by : Julie in Parenting Children with Special Needs Blog at 10:20 am , 290 words, 90 views  
Categories: A Day In the Life..., Treatments/Interventions, Tourettes/OCD
On Tuesday, I took LuLu to the pediatrician. Her DAN! doctor and I had been discussing whether or not she was showing signs of strep. When KayKay was sick too, I decided to pull a two-fer at the doctor's and see if either child qualified for a diagnosable illness. Well, KayKay had a raging sinus infection and ear infection. But LuLu's rapid strep test was positive. LuLu has a history with strep tests --sometimes the rapid test has been negative and the culture was positive -- sometimes just the opposite. So we opted to wait on the antibiotics until after we had the culture results.

Yesterday, LuLu's behaviors spiraled out of control -- and she'd been doing so well (heavy sigh). And last night she started running a fever and complaining of a sore throat. Then, there was that nasty strep breath -- a dead giveaway. But it was most interesting that the symptom that surprised us all was a major eye-blinking tic. LuLu has lots of tics, but eye blinking isn't usually one of them. This tic was severe enough that actually prevented her from being able to watch TV.

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What did this crazy mom do? I excitedly called our DAN! doctor to report a major clue in our theory that LuLu's OCD and Tourettes are related to PANDAS, an autoimmune disorder caused by the strep bacteria. I wrote on PANDAS a few weeks ago.

Doctor prescribed a very strong antibiotic, and I started it immediately, shuffling her off to bed. Today we discussed it a bit further and will probably treat her with Actos after she's over the infection. What's Actos? An immune-boosting medication of some sort. Guess I have my new research project cut out for me!

Comments, Pingbacks:

Comment from: Nancy Spoolstra [Member] Email · http://attachment-disorder.adoptionblogs.com/
Julie, you are beyond amazing.
PermalinkPermalink 05/11/06 @ 11:30
Comment from: The Moose [Member] Email · http://guatemala.adoptionblogs.com/
Wow... I concur with Nancy!
PermalinkPermalink 05/11/06 @ 11:53
Comment from: Julie [Member] Email · http://special-needs.adoptionblogs.com/
I'm amazing??? I'm just THRILLED that I have something I can hang my hat on. I have known for some time that LuLu doesn't WANT to have the disabilities she has and she is not just "acting out" (like the school thinks).

PermalinkPermalink 05/11/06 @ 13:17
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