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Parenting Children with Special Needs Blog

03/09/06

RADishes, BP and Aspies - What's In a Name?

Posted by : Julie in Parenting Children with Special Needs Blog at 07:37 am , 537 words, 91 views  
Categories: Support, Attachment, Autism
Parents of children with Reactive Attachment Disorder frequently get taken to
task for calling their children "RAD kids" or "RADishes". While these terms personally make me cringe and I'm not sure I've ever called my child either, I tire of the criticism being leveled at parents already under a great deal of stress.

I wonder if parents of children with other disorders are held to the same standards. I've recently come across quite a bit of literature referring to "apsies" -- i.e. children and adults with Asperger's Syndrome (a high functioning form of autism). While the name is "cute" (sounds like a bunch of ski bums headed to Colorado to me), it is still a "labeling" of the child per their disability. Do people get taken to task for this one? There's even an organization called Aspies for Freedom -- a support group that contends that Aspergers is not a "disorder" but an alternate way of thinking. Hmmm...there are groups that contend just about anything. (After visiting a Chinese orphanage full of babies I'm still trying to wrap my head around the anti-adoption arguments, but that's topic for many other people's blogs, not here.)

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Then there's always BPKids, the highly informative, often-referenced website for the Child and Adolescent Bipolar Foundation. Do people take them to task because they refer to themselves as "BPKids"? -- and no the BP isn't for blood pressure! I've even worked with parents who refer to their "Downs" baby -- a child with Downs Syndrome -- and to my knowledge nobody's jumped down their throats either.

Why do parents do this, and do we mean anything by it? Critics of the parents who call their kids RADkids claim it reduces the child to a "thing" and defines the kid by the disorder. Most of the parents I know of emotionally disturbed children don't think of their children as "things" or labels, but use the labels for convenience sake -- in conversations to distinguish their children with disorders from their other children. In some forums, parents call their other children "NT" children or "neurotypical" children (leading us back to that whole "what is normal?" conversation). Critics charge that it defines the child by his/her disability. But my contention is that these disabilities are so profound that they often define the family by the magnitude of the impact -regardless of the label!

As speakers of the English language, we all use adjectives to shorten what we're trying to say. This is my older daughter, my ex-husband, my rich great aunt. The adjectives distinguish them from others and describe who they are. Just the point, critics says, our children are not their disorders.

One group of pediatricians has suggested that we call kids "quirky" as opposed to heavy diagnostic labels. They said so in Newsweek. Wonder if that would work? Just exactly which therapies and medications are prescribed for "quirky"????

So what do you think? Do parents use labels in a harmful way? Are parents of children with attachment disorder doing harm to their children by calling them RAD? Is there a double standard depending on the disability? Is labeling a bad thing, or a necessary way to describe and classify the disorder?

Comments, Pingbacks:

Comment from: Nancy Spoolstra [Member] Email · http://attachment-disorder.adoptionblogs.com/
Great thought-provoking post, Julie. Here's a label I will NEVER forget... a well-known attachment therapist was telling me about a particular child she had treated and she described him as an "FLK". I was stumped... and she told me that meant "Funny Looking Kid"!!! Apparently that is an acronym used in at least SOME mental health/child communities. She wasn't being nasty or disrespectful... it was just a way of describing what she was seeing. So if therapists can use FLK, why can't parents use RAD? Certainly there are more important things for folks to stew about than how we describe our kids?
PermalinkPermalink 03/09/06 @ 21:44
Comment from: Julie [Member] Email · http://special-needs.adoptionblogs.com/
It's not just therapists - I was introduced to FLK through our pediatric nurse practioner. They "label" kids like that to say that there may be something medically going on there - like FAS or other conditions that affect their appearance.

I realize that non-labeling is PC...but what isn't PC in my book is keeping families from being able to express what it's like living with and loving special kids!!!
PermalinkPermalink 03/10/06 @ 08:33
Comment from: theaquinos [Member] Email
In a world where everyone is so afraid to be politically incorrect, I find no difference in refering to my children as my lefty, my blondy, or my aspie. It is a term that is discriptive of either my childs physical traits or mannerisms. By saying my aspie (to my inner circle who would know what that meant) they would recognize that the story I am about to relay needs to be understood as it would relate to a child with aspergers. I am probably more concerned when people refer to my daughter as a blonde whenever she does something age appropriate for a 13 year old but not too smart for an adult.
PermalinkPermalink 03/14/06 @ 13:20
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