Parenting Children with Special Needs Blog

11/01/06

I’m With Michael’s Mom

Posted by : Julie in Parenting Children with Special Needs Blog at 06:17 am , 625 words, 72 views  
Categories: Policies, Laws, and Systems, Disorders


Michael’s mom is hopping mad…and who wouldn’t be? Yes, I’m talking about Michael J. Fox and the asinine things Rush Limbaugh had to say about a campaign ad Michael did recently. Before any of you get your political back up, let me inform you that I was born and raised in Missouri…by staunch Republicans. And much to the chagrin of more moderate or liberal friends…I often stick to my conservative roots.

But this isn’t about politics! As the mother of a child with a disability, I have to say that publicly ridiculing a disabled person for the manifestation of their disability is more than wrong! And if I were Michael’s mom, I’d be fuming too. Limbaugh had the audacity to say that Fox had either purposely stopped taking his medications to make his symptoms look worse or was “acting” during the taping of the ad. Fox reported in an ABC interview on Sunday that his mom was with him during the taping of the ad and was aware of how severely he was being impacted by dyskinesia that day, due to the medication.

I don’t think there are words in the English language to explain the pain felt by mothers of disabled people when others shun, ridicule or take potshots at their children. Michael says several times in the interview that he’s a “big boy” and expects the criticism. But I’m with Michael’s mom…it’s incomprehensible!

Fear. It’s all about fear. Michael nailed it in his ABC interview on Sunday:

But I know the community was really hurt by it. And it really brings up the specter of, "Go away. Shut the windows. Shut the doors. Close the curtains, and suffer, and don't let us know," because it's a fearful response.

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He goes on to say:

And what the irony is, is that those people that are being pitied or being asked to suffer in silence don't want to suffer, don't see themselves as pitiable, don't see themselves as victims — see themselves as citizens, participants in the process, and people with aspirations and hopes and dreams for the future. They are way more positive as a whole than what I've seen from the community that opposes them.


Perhaps these types of things wound the moms more than the child -- this marginalizing of disabilities and of the people who suffer from them. I know I am instantly angered when someone openly shuns LuLu or refuses to even consider for a second that she is disabled and not just “behaving oddly”. It strikes deep into my soul.

I don’t have a strong position on stem cell research policies (perhaps I would if someone in my immediate family had Parkinsons, ALS or Alzheimers). But I do have a strong position on how much courage it takes to battle both your disability and society at the same time. Michael J. Fox is a hero in my book. He’s taking his affliction and turning it into a huge blessing for all the world by sharing his struggles so publicly. Rush Limbaugh…well that man will say anything for the publicity. God have mercy on his soul if he truly believes some of the hate that dribbles from his own mouth. Apparently Limbaugh went on to accuse Fox of giving others suffering from Parkinson’s “false hope” through his support of stem cell research.

In Michael’s words:
What is crueler, to not have hope or to have hope?... It's about hope. And so to characterize hope as some sort of malady or some kind of flaw of character or national weakness is, to me, really counter to what this country is about.


Comments, Pingbacks:

Comment from: marymartha [Member] Email
And then Rush went ON to say that he was SORRY for saying that it looked like Michael was acting worse than it was because he had several of his callers (all conservatives) call in and say that Michael has been seen several times like that.

Also Michael has publicacly admitted when he is working for stem cell reserach or on the political trail he often does not take his medacine so he appears worse than he would be if he was on his meds.

Sounds like both guys are acting like scumbags. ONe for running down a guy with a disease and one for basically lying and making it worse than it could be so he could get his liberal agenda across.
PermalinkPermalink 11/01/06 @ 08:37
Comment from: Julie [Member] Email · http://special-needs.adoptionblogs.com/
I haven't heard that Fox admitted to not being on meds. All the reports I read said he was overmedicated for the ad and that the dyskinesia is from overmedication.

If Parkinson's is anything like Tourettes - anxiety (even positive anxiety) can make the symptoms look worse. So if Fox is passionate, I'm guessing it would make the symptoms more pronounced.

One thing on which we do agree...Michael didn't have them do retakes until all his symptoms were gone from the ad. He was making his point by exhibiting the symptoms/effects of his disability and its medication...to promote an agenda.
PermalinkPermalink 11/01/06 @ 11:00
Comment from: marymartha [Member] Email
The admission of not using his meds was in his book where he said when he testified before congress he didn't take his meds before hand. He has admitted doing this in the past, but I don't know if he did here or not. Parkinsons isn't like tourettes from what I understand and can be fairly well controlled with Meds, but is still a major medical issue. I just don't like that Rush's apology (and I'm not a rush fan) hasn't been included on ANY news reports. It came less than TEN MINUTES after his initial comments and he stated he was WRONG to say what he said. This was before any media firestorm.
PermalinkPermalink 11/01/06 @ 11:20
Comment from: Peanut [Member] Email
Well (being a Missourian) I have to say, I do not like someone (who is not from here, living here, or voting here) telling me how (and for what or whom) they feel I should vote.
While I have compassion for Mr. Fox & his illness,I wish he would have not inserted himself into Missouri politics. Believe me when he mentioned a candidate to support, he took up the politics and not just an issue. His add was not just about supporting stem cell research, it was also supporting a candidate (politics). I saw many other adds that did not support this amendment, but they did not suggest a political figure to connect that to.
PermalinkPermalink 11/01/06 @ 20:43
Comment from: Angela [Member] Email · http://ukraine.adoptionblogs.com/
marymartha, Rush didn't apologize.

http://thinkprogress.org/2006/10/25/limbaugh-fox-no-regrets/

PermalinkPermalink 11/03/06 @ 09:24
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